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This job was posted by https://illinoisjoblink.illinois.gov : For more information, please see: https://illinoisjoblink.illinois.gov/jobs/11823242 Department

BSD PED - Hematology, Oncology, and Stem Cell Transplantation - Pediatric Cancer Data Commons: Operations

About the Department

The Biological Sciences Division\'s \'Data for the Common Good\' (D4CG), is a rapidly-growing team of experts in medicine, clinical research, public health, data standards, data infrastructure and programming, data governance and international data sharing. Headquartered in the Department of Pediatrics at the University of Chicago, Data for the Common Good works to connect and share disparate data sets in order to alter long-standing research paradigms and enable the study of new research questions that drive cures. Its signature flagship project, the Pediatric Cancer Data Commons (PCDC), houses the world\'s largest set of clinical data for pediatric cancer, uniting clinical data from across five continents for almost all types of pediatric cancer. Leveraging its expertise in establishing data commons, Data for the Common Good has expanded to create similar infrastructure across other rare diseases, including rare forms of diabetes, pediatric epilepsy, Crohn\'s and ulcerative colitis, traumatic brain injury, and adult cancers, as well as a university-wide initiative called the Sociome, a scalable and extensible infrastructure and architecture that will ultimately assemble, quantify and organize the entirety of social context experienced by every individual.

D4CG has been funded to create the world\'s largest pediatric epilepsy data commons by gathering EEG, clinical, microbiome, and genetic data from medical centers and patient advocacy groups, and working with these data contributors to agree on a common set of data elements. The D4CG team will then link retrospective data to real-world clinical information, such as demographics, surgical history, device use records, diet records, medication history, and/or family history. By doing so, we enrich the usefulness of data and open new avenues of research.

Job Summary

The Program Director will be responsible for managing the development of the pediatric epilepsy data commons, including: the creation of new or cultivation of existing consortia to contribute data to the effort, represent D4CG and pediatric neurology in the development of project oversight, organizational structure of the contributors, liaise with technical team on the development of data structures and workflows, maintain product delivery according to milestones and report on overall project progress. This position uses best practices and knowledge of non-technical (not information technology or clinical- related) projects from conception to completion. Assembles teams and leads them, develops detailed work plans, schedules, project estimates, resource plans, and status reports while being the point of contact for those projects.

This at-will position is wholly funded by contractual grant funding which is renewed under provisions set by the grantor of the contract. Employment will be contingent upon the continued receipt of these grant funds and satisfactory job performance.

Responsibilities

• Plans, coordinates, arranges, leads and reports on epilepsy consortia meetings and workshops with key stakeholders, including D4CG team experts, pediatric neurology physicians and technologists, informaticists, technology experts, and project sponsors.
• Creates project management and consortia work plans and timelines and communicates accordingly with D4CG leadership, project management team, and consortia leadership. Builds and executes project plans.
• Leads and coordinates the successful integration of vendor and/or consultant tasks and tracks and reviews vendor and/or consultant deliverables.
• Acts as a res urce and subject matter expert for project team and provides analytical guidance. Interprets complex project issues and provides analytical guidance to a project team.
• Ensures project deliverables are completed according to both internal and stakeholder timelines, notifies D4CG leadership when project timelines are at risk, and works with team members to ensure corrective measures are taken to ensure successful project completion.
• Coordinates events, researches logistics, assists with planning and preparing presentations, event outreach, and post-event write-ups.
• Tracks progress, conducts analyses, as well as prepares for and facilitates project meetings.
• Works independently to develop detailed work plans, schedules, project estimates, resource plans, and status reports. Assembles and leads a project team, assigns individual responsibilities, identifies appropriate resources needed, and develops schedules to ensure timely completion of projects.
• Tracks progress, conducts analysis, as well as prepares for and facilitates project meetings. Ensures adherence to quality standards and reviews project deliverables.
• Acts as a resource and subject matter expert for project team and provides analytical guidance. Interprets complex project issues and provides analytical guidance to a project team.
• Performs other related work as needed.